Foundation of eni

On September 1st, 2007 the European Network for Ichthyosis (eni) started in Muenster, Germany.

Representatives of Ichthyosis patients' associations from Spain, Germany, Sweden, Denmark, Belgium, Finland, Switzerland and Italy met in Muenster.

The First World Conference on Ichthyosis, which was hosted by NIRK, the German Network for Ichthyosis and Related Keratinization disorders, took place at the same time, so the representatives also had the opportunity to be part of this Conference led by Prof. Dr. Heiko Traupe.

This first Pan-European meeting witnessed inspiring and fruitful discussions on the possibilities of co-ordinated European networking.

All representatives agreed that having a common voice, working on joint activities at a European level and obtaining a partner for all European authorities, should be the main targets of our Pan-European organisation.

The European ichthyosis associations now have a mailing list enabling discussions about European topics, the exchange of experiences in general and, of course, direct contact to arrange pan-European activities.

The associations that were unable to participate in this meeting are being contacted and invited to join us as we develop some activities.

Many thanks to NIRK and the German Selbsthilfe Ichthyose for hosting this first meeting of European ichthyosis associations.

 

Text by F.Minelli, G. Wehr and A. Bruenner / Foto by H. Risager and V. Poulsen.