First 23 European Reference Networks for Rare Diseases


A milestone for 30 million patient in Europe. The European Commission announced on 15th December 2016 the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between rare disease patients, clinical experts, and policy makers in EU Member States, at the European Commission and the European Parliament to bring the ERNs to fruition.

The ERNs create a clear governance structure for knowledge sharing and care coordination across the EU. They are networks of centres of expertise, healthcare providers    and laboratories that are organised across borders.

See more information from the attached press release from Eurordis.