Eurodis News 2013 November 28

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EURORDIS eNews, 28 November 2013
Like EURORDIS eNews: ECRD 2014 Berlin – Registration now open! on Facebook share on Twitter
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The Voice of Rare Disease Patients in Europe
The European Conference on Rare Diseases & Orphan Products
(ECRD Berlin 2014): creating sustainable strategies
Members of the rare disease community will be gathering in Berlin, Germany, on 8-10 May 2014 for the European Conference on Rare Diseases & Orphan Products (ECRD 2014 Berlin). We hope to see you there, too!
Read more
ECRD jigsaw puzzle piece
RARECONNECT
Online Communities For Rare Disease Patients
Instead of fighting Idiopathic Pulmonary Fibrosis and watching it defeat me, I decided to bond with it
RareConnect
EURORDIS TV
Compelling videos from the rare disease community on EURORDIS TV
Luke's mum has Huntington disease and Luke has a 50% chance of inheriting it. Will he take the test when he turns 18 to find out if he has the faulty gene?  
http://www.eurordis.org/tv?vId=7147&cId=9602&wId=1811&mId=15095
NATIONAL PLANS
Towards comprehensive National Plans and Strategies for Rare Diseases across Europe
EUROPLAN Conference in Serbia on 5-7 December
EVENTS
Check out the latest international rare disease events
EFGCP Conference 2014: Benefits and Risks of Research: How Do We Redress the Current Imbalance? 28 - 29 January, Brussels
International rare disease events
MEMBERS' CORNER
Check out the latest news and events from our members
Encephalitis: A Research Update. Monday 2 December, London UK
MEMBERS' CORNER
ORPHAN DRUGS
Find out the latest orphan drug designations and market authorisations
 
Orphan Drugs

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This publication (or activity) has been funded with support from the European Union's Health Programme. This material only reflects the views of the author, and funders cannot be held responsible for any use which may be made of the information contained herein.
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